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Home » Managing Illnesses » Rare Disease » Breaking Down Barriers for Children with Rare Neuromuscular Disorders

During a time when being understood, included and involved is critical, classroom environments can be a daunting place for anyone, but especially for children affected by rare disorders, like neuromuscular disorders (NMD). But, Muscular Dystrophy Canada (MDC) is here to help! By joining the classroom or learning environment and offering tools to help educate a wide range of audiences on specific NMDs, we open the conversation around disability and inclusivity!

Muscle Fact presentations provide schools with a better overall understanding of neuromuscular disorders by having MDC staff join students and teachers to share information about specific conditions experienced by students in the community. This includes discussions on symptoms, equipment and why it’s used and so much more! They are a great opportunity for open discussion between everyone to improve the classroom experience for all.

Natalija Manigoda shares her experience with MDC’s presentation at her son’s school. “It truly takes someone who understands not only NMDs but also a young student’s mind to be able to speak with them in a relatable and understandable way. My main concern going into this presentation, at my son Neema’s school, was how he would react and feel. But it was unfounded because the presentation focused on neuromuscular disorders, and how it affects every day life,” shared Natalija. “I like how the students were completely engaged because the presentation was fun and interactive. I was pleasantly surprised by how many students had great questions. It was an incredible teaching moment that clearly explained how these disorders affect student life.”

As neuromuscular disorders are rare or ultra-rare, many educational staff have not experienced teaching students affected by NMDs. It can be overwhelming to figure out how best to support that student. Don’t worry! MDC is here for educators too. Lunch and Learn sessions educate about an NMD affecting a student and provide an opportunity to brainstorm ideas to promote an inclusive school environment and adapt activities to ensure the child’s needs are met.

AccessAbility workshops promote awareness and understanding of people with disabilities by focusing on their strengths, using games and adapted communication techniques. Sponsored by the Canada Post Community Foundation, these workshops address not only NMDs but any type of disability, and focus on six main areas of development: Function, Family, Fitness, Fun, Friends and Future.

To learn more about Muscular Dystrophy Canada and the services and programs we can provide, thanks to generous donors, visit or call 1-800-567-2873. If you require support, you can also visit to connect with an MDC Service Specialist in your area!

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