Health Insight
Managing Illnesses
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Improved Outcomes Are Possible, So It’s Time for Change
Survival rates for those with ovarian cancer haven’t improved in 50 years. But enough is enough — it’s time for change.
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Understanding the Role of Oncology Nurses in Advancing Patient Care
Who are Oncology Nurses? A specialized Oncology Nurse is a registered nurse whose primary focus is cancer care. This nurse has enhanced specialty knowledge and skill, and practices in broad range of settings providing cancer care to patients, families, and communities. Oncology nurses are critical partners of the healthcare team and provide support across the...
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Understanding the Important Role Pharmacists Play in Oncology Research
Pharmacists have an important role to play in cancer care, and the Canadian Association of Pharmacy in Oncology is fully behind them. Caring for cancer patients requires a team approach, with a dedicated network of health care professionals working together to support both patients and caregivers through their cancer journey. This team includes oncology pharmacists,...
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Living with a Rare Disease Isn’t Easy, but Hope and Support Prevails
For the millions of Canadians living with rare diseases — along with their caregivers — support and community are available. One in 12 Canadians is living with a rare disease, which is defined as a disease that affects less than one person per 2,000 people. It’s estimated that there are over 7,000 rare diseases, and...
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Why Ontario Needs a Rare Disease Strategy
Canada’s rare disease patients face many challenges, including long diagnosis journeys and barriers to treatment access — and it’s time to change that.
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The Clock is Ticking for Ottawa to Deliver on Its Rare Disease Strategy
Canada desperately needs a rare disease strategy that’ll enable better patient care and access to treatment for those living with rare diseases. The start of a new calendar year signifies hope and new beginnings for many, but for the 1 in 12 Canadians affected by a rare disease, it marks another year without news of...
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Time is Muscle for Children Living with Duchenne Muscular Dystrophy
Six medications have been approved for Duchenne muscular dystrophy in the United States and Europe, while Canadians have nothing. One in every 5,000 boys worldwide is born with Duchenne, the most common fatal form of muscular dystrophy. The disease is relentless. It slowly weakens the body’s muscles, deteriorating the function of vital organs and ultimately...
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Boosting Awareness of This Rare Genetic Condition Can Save Lives
Increasing awareness of hypophosphatasia is essential for supporting Canadians living with this rare condition, along with their caregivers and doctors.
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Improving Canadian Rare Disease Patients’ Access to Treatment
Bayshore Specialty Rx is on a mission to help rare disease patients across Canada gain access to the treatments they need. Reducing the barriers to therapeutic access for rare disease communities People living with a rare disease face several challenges over their lifetime; delays in diagnosis for months or years after symptom onset, specialists can...
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Early Treatment Redefines Quality of Life for Those with Spinal Muscular Atrophy (SMA)
The SMA journey is a lifelong marathon, and sustained treatment is vital for overcoming its peaks and valleys. Natalie Essex is an unstoppable nine year old from Delta, BC. Aside from enjoying school and a rich social life, Natalie weaves, sews, creates visual art, and sings in a children’s choir. She loves writing stories on...