Managing Illnesses
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Why Understanding Gut Health Is Critical to Unlocking Health Benefits
Understanding our mysterious gut microbiome may help unlock the key to better living and more tailored health probiotic products. Much of the human body remains a mystery, and the gut may be the most elusive. Similar to a fingerprint, the gut microbiome is unique to each individual, made up of trillions of microbes that live...
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How Brain Cancer Canada Is Changing the Outlook for Patients
A brain cancer diagnosis can be scary — Brain Cancer Canada provides hope, research funding, and resources across Canada. A brain cancer diagnosis is a devastating new reality for approximately nine Canadians each day. Patients, families, and neuro-oncology experts are scrambling and deserve better. Brain cancer, pediatric or adult, remains incurable. The physical, logistical, emotional, and...
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Understanding Migraine: A Complex Neurological Disease
Migraine is a misunderstood disease, and Migraine Canada™ is working to improve care and awareness. Migraine has long been misunderstood, often dismissed as nothing more than a headache. Migraine’s complexity as a neurological disease is often overlooked, while the effects of stigma, misdiagnosis, and medical neglect are still felt today. There’s still a long way...
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Innovative Treatment for SOD1-ALS, a Genetic Form of ALS, Brings Hope to Community
Paula Trefiak shares her experiences living with ALS alongside ALS community members, Leah Stavenhagen, Steven Spangenberg, and Leanne Sklavenitis at the International Alliance of ALS/MND Associations 2024 Alliance Meeting, held in Montreal, Quebec, in December.
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Breaking Down Barriers in Neuromuscular Care: Why Now Matters
Patient voices, groundbreaking research, and tireless advocacy are changing the future of neuromuscular care in Canada. When you hear “muscular dystrophy,” you might picture a single disease. In reality, it’s part of a much larger group of neuromuscular disorders (NMDs) — rare, often progressive conditions that weaken the muscles we rely on to move, breathe,...
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How Families Are Leading the Fight Against Duchenne Muscular Dystrophy
Duchenne muscular dystrophy doesn’t just affect one person — it changes everything for families. But no one has to face it alone. For 1 in every 5,000 boys, a Duchenne muscular dystrophy diagnosis will rewrite their future. Though it’s rare, this genetic disorder has a profound and lasting impact on the children and families it...
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Children With SMA Are Achieving More Than Ever Thanks to Medical Advancements
The positive, long-term impacts of scientific research on the lives of young SMA patients are becoming clear. Even as an infant, Zoe Koontz of Victoria, B.C., showed remarkable drive and determination. “She was one of those high-spirited babies, always trying to communicate and engage,” says her mother, Vivienne Damatan. But when Zoe reached 15 months,...
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Has Chronic Pain Touched Your Life? Consider Joining This Public Event
On Friday, May 2nd, support and advocate for those who have chronic pain at the Canadian Pain Society’s Day of Mobilization. From May 1st to 4th, the Canadian Pain Society (CPS) is hosting their 45th Annual Scientific Meeting at the University of Toronto. With over 500 in-person attendees and livestreamed to a global audience of...
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William Osler Health System: Leading the Way in Dementia Care
William Osler Health System set out to transform how patients with this chronic and progressive illness receive care in hospital. With more than one million people in Canada expected to live with dementia by 2030, William Osler Health System (Osler) – a hospital system in the Greater Toronto Area that serves a region of over...
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Taking Steps to Thrive with Arthritis
Living with a chronic condition involves enduring illness for prolonged periods. In the case of arthritis, however, it means having a serious disease for life. It’s a scary and overwhelming prospect. In Canada, arthritis is a growing problem. More than six million Canadians currently live with over 100 different types of this incurable disease, which...
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