Health Insight
Managing Illnesses
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Breakthrough in Bladder Cancer Treatment: A New Era of Hope
Bladder cancer treatment has entered a transformative era with Padcev (enfortumab vedotin) and Keytruda (pembrolizumab), a groundbreaking combination recently approved by Health Canada. This innovative therapy is transforming outcomes for patients with metastatic urothelial cancer, offering hope for patients who previously faced limited treatment options. Historically, advanced bladder cancer treatment relied heavily on chemotherapy, which...
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Bridging the gap between research and cancer treatment
BioCanRx is a network of scientists, clinicians, academic institutions, patients, NGOs and industry partners working together to accelerate the development of cancer immunotherapies to get these to patients, more quickly At a conference in 2016, Canadian researchers listened to US scientists talk about making CAR T cells. In CAR T-cell therapy, a patient’s own immune...
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Transformative Change in Blood Cancer Care Means Hope for Canadian Patients
The fight against cancer is relentless, and for Canadians living with blood cancers such as Chronic Lymphocytic Leukemia (CLL), innovation is critical. As the treatment landscape evolves, one biotechnology company is dedicated to ensuring that life-saving therapies reach those who need them most. BeiGene, a global oncology firm, entered the Canadian market in 2021 and...
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Disruptive Innovation: Tackling Cancer in Leaps and Bounds
Many problems in cancer need big-picture thinking. Disruptive innovation aims high to drive better cancer prevention, detection, treatment, and support. Big problems need bold solutions. That’s why impactful innovation is a vital part of cancer research. By looking at research problems in new ways and testing the limits of new technologies, we can gain a...
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Defeat Duchenne Canada Wants to Turn Rare Disease Promises into Action
Bridging the gap in treatments, policies, and support for Duchenne and all rare disease families in Canada. On February 28th, we recognize Rare Disease Day. For families impacted by Duchenne muscular dystrophy and other rare diseases, it is a day to raise awareness of what is happening in Canada for people with rare diseases. Thirty...
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Taking control: How patients living with SMA can achieve more through active living
Exercise is a key difference maker for patients with SMA and works hand in hand with other medical advancements. As a child, Mitchell Choma rarely sat still. Passionate about sports, he especially loved playing football and hockey in his hometown of Burlington, Ont. Then, at 15, his future was put in doubt when he was...
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Innovative Pathways to Improving Access to Treatments for Rare Diseases
Innovative patient support programs and data-driven solutions are improving access to life-saving rare disease therapies in Canada. Patients with rare diseases face significant barriers in accessing innovative therapies. The high cost of these drugs presents challenges to public and private drug programs, as well as the provincial and territorial health care systems. Timely access to...
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Strengthening Canada’s Rare Disease Strategy: A Call for Action
Changes are needed to Canada’s national rare disease strategy to improve timely access to innovative medicines. Over the past two years, Canada has made some progress in addressing the needs of the 1 in 12 Canadians living with a rare disease. The announcement of the National Strategy for Drugs for Rare Diseases in March 2023,...
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2025: Canada Still Only Developed Country with No Rare Disease Plan
To truly help rare disease patients, Canada must turn promises into action and funding. In 2015, the Canadian Organization for Rare Disorders (CORD) presented to the federal government a National Rare Disease Strategy. In March 2023, the federal government announced $1.5 billion over three years for a Rare Disease Drug Strategy, with $1.4 billion in...
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Eosinophilic Esophagitis: Urgent Need for Better Access to Treatment
Eosinophilic esophagitis is a rare, lifelong disease causing severe digestive issues. Advocates urge action for medication coverage. Imagine eating a cactus and feeling its spines painfully pierce your throat with every swallow. This is life with eosinophilic esophagitis, or EoE, where having a meal is just as excruciating. Sometimes, you choke on food or feel...