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Rare Disease
Rare Disease

Defeat Duchenne Canada Wants to Turn Rare Disease Promises into Action
Rare Disease

Taking control: How patients living with SMA can achieve more through active living
Rare Disease

Eosinophilic Esophagitis: Urgent Need for Better Access to Treatment

Rare Disease

Innovative Pathways to Improving Access to Treatments for Rare Diseases  

Rare Disease

Strengthening Canada’s Rare Disease Strategy: A Call for Action

Rare Disease

Navigating Turbulent Waters Of Access To An Orphan Drug For A Rare Disease: My Family’s Story 

Facing rare disease challenges, a family calls for change to ensure affordable, life-saving treatments for all.  I am Jennifer Adams, a family physician in Ottawa, and this is my family’s story. Our journey began when my daughter, now five, was diagnosed at 18 months with primary hyperoxaluria type 1 (PH1), a rare and life-threatening genetic … Continued