Health Insight
rare disease
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s Sponsored
Being Healthy Is a Privilege
Rare diseases invade bodies without invitation. They steal health, hope, and dreams, leaving families devastated and overwhelmed. Amelia and Gerard Pruchnicki know this better than most. Their 13-year-old son, Cole, has a mitochondrial disease, one of more than 7,000 rare diseases impacting individual Canadians, their families, our communities, and Canada’s health care system. As a...
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Accelerating Canada’s Rare Disease Drug Strategy, Post-Election
For the past year, the Canadian Organization for Rare Disorders (CORD) has committed itself nonstop to the mission of forging a rare disease drug strategy that works for all Canadians and that simultaneously addresses the unique and sometimes disparate priorities of various stakeholders. CORD is determined to continue its trajectory toward implementing Canada’s Rare Drug...
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s Sponsored
Providing Critical Support and Research Funding for Alopecia Areata
Having a condition that causes hair loss can be distressing. The Canadian Alopecia Areata Foundation offers resources and support.
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New Treatments for SMA Provide Options for Patients
SMA treatments can help patients maximize independence and preserve functioning that's vital to their daily lives, but access hurdles remain.
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Research and Development Are Crucial to Discoveries in Rare Disease
Susi Vander Wyk explains how R&D could help increase access to treatment for Canadians living with spinal muscular atrophy.
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How Rebecca Van Fraassen Battles SMA Every Day to Live Life to the Fullest
When Rebecca Van Fraassen was two years old she was diagnosed with spinal muscular atrophy (SMA), a rare genetic disorder.
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Not All Rare Blood Disorders Are Treated Alike
All Canadians with rare blood disorders should have the same access to the best treatment. That's the vision for the national Rare Disease Drug Strategy.
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s Sponsored
How the CMPNRF and the CMPNN Are Meeting the Needs of the MPN Community
There are many types of blood cancers that aren’t as well-known. For those living with myeloproliferative neoplasms (MPNs), these serious cancers are very real.
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s Sponsored
Making Myeloma Matter
Myeloma is the 2nd most common form of blood cancer. Nine new Canadians are diagnosed with myeloma every day, yet we are without a cure.
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How Life Changes When Told You Have a Rare Blood Disorder
Acquired Thrombotic thrombocytopenic purpura is a rare and sometimes fatal blood disorder. Early diagnosis and treatment are needed to ensure positive outcomes.