Health Insight
rare disease
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World Sickle Cell Day
A recent study revealed that at least 3500 individuals in Ontario and 6000 people across Canada live with Sickle Cell disease.
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Bringing Together Families Affected by Histiocytosis
Histiocytosis Association of Canada aims to helps Canadians affected by this group of life-threatening blood disorders.
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The Current Goal: Ensuring Secure Access to Safe Blood Products
Thalassemia disorders are blood disorders where the patient’s body does not produce enough red blood cells to deliver oxygen to the brain.
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New treatments providing hope to Canadians with hemophilia
Advanced therapies reduce the burden of illness and improve the quality of life for people living with a bleeding disorder
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Hemophilia: Brief History of Care and Hope for The Future
Hemophilia is a serious inherited bleeding disorder preventing blood from clotting normally. It affects 3,800 Canadians, one-third of whom have the severe form of the disease. Some of them lack a protein called factor VIII; this is hemophilia A. Others lack a protein called factor IX; their disease is called hemophilia B.
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What if All Rare Diseases Were Treated like Hemophilia?
What is the definition of a rare disease and which drugs should be included under a Canadian Rare Drug Agency? CORD shares their vision for a pathway forward.
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Raising Awareness About Women with Bleeding Disorders
Only one in nine women are diagnosed with a bleeding disorder. Early diagnosis is important to identify potential health concerns for young women and to get them on a path to managing their disorder at an early age.
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s Sponsored
RareConnect: Building Communities for Rare Diseases
RareConnect is a social networking platform that connects families with rare diseases by developing online communities and conversations across continents.
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The Rare Disease Opportunity of a Lifetime
After decades of advocacy, Canada’s rare disease community can develop a comprehensive rare disease strategy — but time is short.
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A Rare Disease Isn’t Stopping This Ambitious Young Artist
Thanks to therapeutic advances, adults with SMA — like 21-year-old OCAD student Rebecca Van Fraassen — are chasing their dreams and reaching their potential.