rare disease Archives

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A Better Approach to Rare Diseases in Canada

Canada's innovative pharmaceutical industry is calling for a more collaborative, patient-focused approach to tackling rare diseases.

4 min read

Clinical Trials Are Vital for Rare Disease Treatments

Clinical trials are critical to the success of research, development, and access to treatments for rare diseases like cystic fibrosis.

2 min read

Young boy getting a vaccination at a doctor's appointment

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Patient Support Programs Help People with Rare Diseases

Support programs empowers patients, help ease their anxiety, and speeds up access to the specialty treatments that they need.

3 min read

Life Sciences Industry Can Help Patients and the Economy

Just as vaccines are helping ease the worries of the COVID-19 pandemic, we're on the cusp of a new and promising era for treating rare diseases.

2 min read

Steven Gallagher holding Iron Man Figurine

Who Was That Masked Man? These Superheroes Fight ALS

Steven Gallagher has ALS. He's turned to superheroes to inspire his fight — and others'— against the terminal neurodegenerative disease.

3 min read

The Rare Neurological Condition That Masquerades as MS

While MS and NMOSD can present similarly, physicians need to be able to tell the apart, because therapies that are effective for MS actually worsen NMOSD.

3 min read

Mother and Daughter posing for a Picture at the Hospital

You Can Help Us Understand and Fight Rare Diseases

We need to truly appreciate the hard work that goes into the research and development of rare diseases in Canada. Hillary McKibbin's life depends on it.

3 min read

Health care worker helping elderly man use his walker

How Everyone Can Be a More Empowered Patient

We asked organizations representing patients how Canadians can become proponents for patient access and what they can do to become more empowered patients.

5 min read

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RNA Technology at the Forefront of the COVID-19 Pandemic Response

RNA vaccines are emerging as the most promising approach for vaccine development, enabling a rapid response to COVID-19 and future pandemics. Precision NanoSystems (PNI) is a leading provider of technologies for the development of RNA vaccines and medicines, and works with over 200 drug development companies and academic institutions. PNI and many of its partners...

1 min read

Personalized Medicine Is Key to Diagnosing Rare Disease

Ontario Genomics leads the application of genomics-based solutions across many sectors, like health care, to improve quality of life for patients.

2 min read