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Living with Spinal Muscular Atrophy

spinal muscular atrophy guide
spinal muscular atrophy guide
Photo courtesy of Daniel Huszar

Spinal muscular atrophy is a complex rare disease that affects approximately one in 6,000 babies born. Through this campaign, we aim to educate and empower Canadians affected by SMA on the resources available to help them navigate the condition and manage the disease.

How Rebecca Van Fraassen Battles SMA Every Day to Live Life to the Fullest

When Rebecca Van Fraassen was two years old she was diagnosed with spinal muscular atrophy (SMA), a rare genetic disorder.

Research and Development Are Crucial to Discoveries in Rare Disease

Susi Vander Wyk, Executive Director of Cure SMA Canada, explains how R&D could help increase access to treatment for Canadians living with rare diseases.

New Treatments for SMA Provide Options for Patients

SMA treatments can help patients maximize independence and preserve functioning that’s vital to their daily lives, but access hurdles remain.

holli vander wyk SMA
Holli Vander Wyk horseback riding with her sister, Amy Vander Wyk

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