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CAMPAIGN: Rare Disease (2024)

  • Advancements in Research Help Patients With SMA Push New Boundaries

    Ty Durant & his mother, Angie. Sixteen-year-old Ty lives with Type 3 SMA and is determined to defy expectations. People with SMA once faced a bleak future. Today they’re not only maintaining ability but achieving more than ever before. Few people, including his doctor, could’ve predicted what Ty Durant would be capable of today. At...

    4 min read
  • s Sponsored

    How Patient Support Services Bolster Up Canada’s Rare Disease Strategy

    Bayshore Specialty Rx is a strategic partner in the implementation of Canada’s new National Strategy for Drugs for Rare Disease. For the 1 in 12 Canadians living with a rare disease and their families, access to groundbreaking therapeutic innovations comes with a high cost. In addition to the time and financial burden of travelling to...

    4 min read
  • s Sponsored

    Breaking Down Barriers for Children with Rare Neuromuscular Disorders

    During a time when being understood, included and involved is critical, classroom environments can be a daunting place for anyone, but especially for children affected by rare disorders, like neuromuscular disorders (NMD). But, Muscular Dystrophy Canada (MDC) is here to help! By joining the classroom or learning environment and offering tools to help educate a...

    3 min read

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